Advancing Education, Research, and Treatment for Sickle Cell Disease Worldwide

Sickle cell disease affects millions of individuals and families across the globe, yet access to education, early diagnosis, and effective treatment remains limited in many regions. The International Sickle Cell Coalition is a US-based nonprofit organization committed to changing that reality through global collaboration, research advancement, and community-driven solutions.

Our mission is to improve quality of life and long-term outcomes for people living with sickle cell disease by supporting education initiatives, advancing research, and helping accelerate access to life-saving treatments worldwide.

Together, We Can Make a Difference

The International Sickle Cell Coalition is dedicated to creating a future where individuals living with sickle cell disease have access to knowledge, care, and treatment regardless of where they live. Through collaboration, research, and education, we are building a stronger global response to sickle cell disease. Join us in advancing hope, health, and equity worldwide.

Our Core Programs

Education and Awareness

We create educational resources and deliver programs that increase understanding of sickle cell disease among patients, families, healthcare workers, and policymakers. Our goal is to reduce stigma, promote early screening, and ensure that clear, evidence-based information reaches every community.

Research Advancement

The Coalition supports and promotes research that explores better treatments, disease management strategies, and eventual cures. We advocate for increased research funding and work to connect scientists, clinicians, and institutions globally.

Access to Treatment

Sickle cell disease outcomes differ dramatically between countries and regions. In collaboration with partners, we work to expand access to diagnosis, medications, supportive care, and clinical services, particularly in underserved areas where resources are scarce.

Patient and Caregiver Support

We offer tools, guides, and support networks for patients and their caregivers to navigate the journey with sickle cell disease. Our resources help people connect with local care providers, participate in support communities, and learn strategies for daily management.

Why Our Work Matters

Sickle cell disease is one of the most common inherited blood disorders worldwide, yet many people still lack access to basic care. In many low and middle income countries, children born with sickle cell disease face significantly higher early mortality without proper diagnosis or treatment. By driving education, research, and access to care, we help create opportunities for early intervention and improved health outcomes. Our work is grounded in collaboration with communities around the world to ensure solutions are culturally relevant and impactful.

Get Involved

Support Our Work

Your donation powers education programs, research collaborations, and care access initiatives that change lives. Every gift helps expand our global reach.

Volunteer

Join our volunteer team to help raise awareness, educate communities, or support events that bring people together in the fight against sickle cell disease.

Partner With Us

We welcome partnerships with nonprofits, research institutions, healthcare organizations, and allies around the world to strengthen the global response to sickle cell disease.

Partner Organizations

We work with international and national partners focused on sickle cell disease, including research alliances, patient advocacy groups, clinicians, and health policymakers. Together we elevate the sickle cell community’s voice and expand access to life-saving solutions.